Advisory Group
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Acknowledgements
The Genetic Counseling Cultural Competence Toolkit content and design was informed by a distinguished panel of
advisors in cultural competence, diversity, pedagogy and genetic counseling. The Project Advisors’ insights and ideas provided
valuable direction to the project.
Judith Benkendorf, MS, CGC
Special Assistant to the Executive Director
American College of Medical Genetics
7220 Wisconsin Avenue,
Suite 300
Bethesda, MD 20814
301.718.9603 (phone)
301.718.9604 (fax)
jbenkendorf@acmg.net
www.acmg.net
Judith Benkendorf is an experienced genetic counselor and past
recipient of the JEMF award. She is an articulate advocate for the
profession with a variety of interdisciplinary and government
groups. Ms. Benkendorf participated in the Changing Face of the
Genetic Counseling Profession retreat as an expert on medical
genetics workforce issues. In her current role as the American
College of Medical Genetics' Project Manager for the GSB/MCHB/HRSA
funded National Coordinating Center for the Regional Genetics and
Newborn Screening Service Collaboratives, she works on activities
that bring genetic services to local communities and build linkages
between public health, primary care and medical genetics providers.
Ms. Benkendorf will advise the project staff on toolkit content and
evaluation.
Tawara D. Goode, MA
Assistant Professor
Director, National Center for Cultural Competence & Associate
Director,
University Center for Excellence in Developmental Disabilities
Center for Child and Human Development
Georgetown University Medical Center, Department of Pediatrics
Box 571485
Washington, DC 20057-1485
http://gucchd.georgetown.edu/nccc
Tawara Goode is an internationally known expert in cultural
competence. Ms. Goode was a plenary invited speaker at the 2004
retreat, Changing the Face of the Genetic Counseling Profession,
major plenary speaker at the 2006 NSGC annual education meeting and
a consultant to the interdisciplinary course mapping project led by
Ms. Warren. Ms. Goode has developed extensive content and
evaluation tools to promote individual and organizational cultural
competence. She will advise the project staff on toolkit content and
evaluation.
Ilana Suez Mittman, PhD
MS Director of Health Policy Research
The Sullivan Alliance to Transform America's Health Professions
1090 Vermont Ave., NW,
Suite 1100
Washington, DC 20005-4928
imittman@thesullivanalliance.org
Ilana Mittman is the Director of Health Policy Research for the Sullivan Alliance to Transform America’s Health Professions. In that role, she helps guide national efforts to diversify the health professions through forming state collaboratives and networking with professional societies, health professions schools, and other stakeholders. Mittman received her doctorate in health policy and management in 2005 from the Johns Hopkins University Bloomberg School of Public Health, where she was a Kellogg Pre-Doctoral Fellow in Health Policy Research. Following her graduation from Hopkins, Mittman joined the Maryland Department of Health and Mental Hygiene Office of Minority Health and Health Disparities, where she directed a project to increase diversity in medicine, nursing, pharmacy and dentistry in the state of Maryland and worked with local hospitals and academic health centers to increase cultural and linguistic responsiveness among health professionals.
Kelly E Ormond,
MS, CGC
Associate Professor, Department of Genetics
Director, MS in Human Genetics and Genetic Counseling
Stanford University
300 Pasteur Drive H315
Stanford CA, 94305-5208
Phone: (650) 736-9847
Fax: (650) 498-4555
kormond@stanford.edu
Kelly Ormond is a highly experienced program director colleague
and genetic counselor with a particular interest in diversity
issues. Ms. Ormond, as a former Midwest Genetic Counseling Program
Director, attended the Changing the Face of the Genetic Counseling
Profession Retreat in 2004. As recent past president of the NSGC,
Ms. Ormond provided advocacy and promoted open discussion regarding
the importance of integrating cultural competence within the genetic
counseling profession. Ms. Ormond will assist in reviewing and
piloting activities for suitability in genetic counseling program
curricula.
Sheetal Parmar, MS, CGC
Genetic Counselor
Prenatal Diagnosis of Northern California
1111 Exposition Blvd. Bldg 200
Sacramento, CA 95815
Phone: (916) 779-3248
Fax: (916) 779-3258
sparmar@pndx.com
Sheetal Parmar is a board-certified genetic counselor with
particular expertise and understanding of diversity issues. As a
minority genetic counselor, she has been through the ranks herself
of learning about the field, applying to programs, training, and
then practicing in the profession. Her insights will be invaluable
to identifying resources, developing case studies, and considering
applications to genetic counseling of existing resources. Ms. Parmar
is a member of the NSGC Membership Committee and Task Leader for the
NSGC Diversity Workgroup. She will serve as a liaison to the NSGC
to ensure this project complements organizational efforts to
increase diversity and cultural competence.
Gloria
Sanchez-Raiza, MS, MPH, CGC
1256 Stampede Way, Unit 2
Chula Vista, CA 91913
Phone: (619) 941-1556
Fax: (619) 941-1556
gsanchez11@cox.net
Gloria A. Sanchez-Araiza is a genetic counselor, with three
decades of experience, dedicated to raising the awareness of
cultural factors in the practice of genetic counseling among genetic
counselors, other health care providers, minority groups and
clients. She has authored publications and has led many committees
and initiatives in this area of interest. As immediate past Chair of
the NSGC Diversity Subcommittee, she led the effort to gain NSGC
presence at the Minority Women’s Health Summit and the Society for
the Advancement of Chicanos and Native Americans in Science annual
meetings. Ms. Sanchez-Araiza will advise the project staff on
toolkit content and evaluation.
Kami Wolfe Schneider, MS
CGC Genetic Counselor
Clinical Genetics and Metabolism
13123 East 16th Avenue, Box 300
Aurora, CO 80045
Phone: (303) 724-3250
Fax: (720) 777-7322
Email:
Schneider.Kami@tchden.org
Kami Wolfe Schneider is a board-certified genetic counselor with
expertise in cancer and prenatal genetics. Her professional
interests include overcoming the barriers to minority recruitment
into the genetic counseling profession. Ms. Schneider participated
in the Changing the Face of the Genetic Counseling Profession
retreat as a student assistant. She and Ms. Warren have collaborated
on several diversity-related presentations and research projects.
Ms. Schneider is also an active participant in NSGC diversity
activities and currently acts as a member of both the NSGC
membership committee and its diversity workgroup. Ms. Schneider will
contribute perspectives from her professional practice experience to
advise development of the GCCCT.
Dr. Barbara Jones Warren,
PhD, APRN, BC
Associate Clinical Professor
The Ohio State University, College of Nursing, Newton 316
1585 Neil Avenue
Columbus, Ohio 43210-1289
Phone: (614) 292-4847 (Monday, Thursday and Friday)
warren.4@osu.edu
Phone: (614) 752-9875 (Tuesday and Wednesday)
warrenb@mh.state.oh.us
Fax: (614) 885-9336
Dr. Barbara Warren is an Associate Clinical Professor at the Ohio
State University, College of Nursing and is the Executive Nurse for
the Ohio Department of Mental Health. NSW has been working with Dr.
Warren for the last two years; she is a consultant on the
interdisciplinary grant project to use course mapping to integrate
cultural competence into allied health training programs. Dr.
Warren has a great deal of wisdom and experience regarding how to
best integrate cultural diversity into live and online graduate
level health care courses. NSW will seek regular guidance from Dr.
Warren on matters of culture and pedagogy. Several face to face
meetings of NSW and Dr. Warren will be convened at OSU for
brainstorming and reviewing the GCCCT design and content.
Mary Watkins, BA
Executive Staff Assistant
UC International Affairs
PO Box 210640
Cincinnati, OH 45221-0640
Phone: (513) 556-3004
Fax: (513) 556-2990
watkinml@ucmail.uc.edu
Mary Watkins is currently Executive Staff Assistant to the Vice
Provost for International Affairs at the University of Cincinnati.
She is the former Director of Graduate Recruitment and Retention at
the University. One of her responsibilities at that time was
administering the Yates Fellows and Scholars Program, which provides
full scholarships to underrepresented graduate students. Ms. Watkins
is also a 22 year veteran of producing publications for target
markets as Assistant Director of Public Relations at UC. She
participated in the Changing the Face of the Genetic Counseling
Profession retreat as a “minority partner” and she has subsequently
worked with NSW on writing text for the NSGC prospective student
recruiting brochure. Ms. Watkins will contribute expertise on both
cultural competence and pedagogy to this project. Since Ms. Watkins
works locally, she will meet regularly with NSW to hone the design
and content of the GCCCT.
Jon Weil, Ph.D. Genetics,
Ph.D.
Clinical Psychology
Associate Clinical Professor of Pediatrics
University of California,
San Francisco
Mail: 2015 Mira Vista Drive, El Cerrito, CA 94530
Phone: 510-237-1906
weilj@berkeley.edu
Jon Weil is the former Director of the Masters Degree Program in
Genetic Counseling, School of Public Health, University of
California, Berkeley (1989-2001). A major focus of his tenure was
the development and promotion of ethnocultural competence as a
central issue in genetic counseling. He pursued this through
teaching and supervision at the program level and with seminars,
workshops and publications at the national level. His book,
Psychosocial Genetic Counseling, Oxford University Press, 2000, has
an extensive chapter devoted to ethnocultural issues. Since retiring
in 2001 he has remained active professionally through writing,
seminars, teaching, mentoring and serving on the Editorial Board of
the Journal of Genetic Counseling, with continuing involvement in
promoting ethnocultural competence.
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