Resources/Referral/Follow Up

Personal Reflections

What are your personal experiences in coordinating genetic research studies?

What are your experiences in explaining or offering to refer clients to national or local genetic research studies?

Have you ever personally been a participant in a genetic research study?

What experiences do you have working with consanguineous couples?

What are your personal thoughts and feelings about consanguineous unions? Have you worked with first or second generation immigrants before?

If yes, where were the immigrants from?

What challenges did you face?

What thoughts and emotions do you have when preparing to counsel a “Middle Eastern” client?

Have you ever been uninsured?

What is your experience working with people who are poor?

How does your institution capture patient race and ethnicity information?

Do these standards vary in specific genetics clinical or research settings at your institution?  If so, how and why do they differ?

 

 

 

 

 

 

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