Discuss Diagnosis and Natural History

Resources

Refugees

http://www.refugees.org
The US Committee for Refugees and Immigrants works for the needs of refugees by advancing public policy and aiding in receipt of professional services. The USCRI helps refugees who are fleeing war find immediate safety and refugees who are searching for a permanent home, helps refugee children who may have been separate from their family, and works to resettle families into the US. Their website outlines their initiatives and resettlement programs, results from the Refugee World Surveys, and how to get involved.

http://www.refintl.org
Refugees International works for assistance and protection for all refugees. Their website describes their policy recommendations, current projects and past successes, and outlines ways to get involved with their cause.

http://www.unhcr.org
The United Nations High Commissioner for Refugees works in Africa, Asia and the Pacifics, the Americas, Europe, Middle East and North Africa to help refugees, internally displaced persons, stateless persons, asylum-seekers, children, elderly, people with disabilities, women, and returnees find safety and peace. Their roles range from advocacy to fundraising to protection to asylum and migration. The UNHCR website provides definitions of the various groups they serve and explanations for the work they do for those groups. They also offer links to resources including maps, statistics, current research, publications, archives and more.

“Passport Health Plan, a Medicaid managed care plan headquartered in Louisville, Kentucky, produced a video in 2007 that chronicles the lives and stories of former refugees who now serve as medical interpreters. Through interviews, each of the subjects discusses their personal journey to America, their struggle to assimilate to a new culture, and along the way, dispel a number of common stereotypes. This video is a great tool for both staff and professional training when discussing refugees, why they come to the United States, and the contributions they make to an increasingly diverse America” (Lucy Ricketts, Producer, personal communication, 07/22/09). A copy of this video, “They Bring the World”, along with a Viewer’s Guide can be obtained by emailing Lucy Ricketts at lucy.ricketts@amerihealthmercy.org.

Addressing Refugee Health Disparities

PowerPoint Presentation This PowerPoint discusses adverse health risks in refugee populations, the scope of disparities, and health issues related to return and repatriation. It was created by Dr. Brian Gushulak of Migration Health Consultants, Inc. http://www.migrationhealth.com

Multilingual Resources

http://www.brycs.org 
The Bridging Refugee Youth and Children’s Services website offers resources for Educators, Parents, Practitioners, Program Managers, Researchers, and Policy Makers regarding health education, literacy, multilingual pamphlets, program development, public policy and more.

http://www.healthinfotranslations.com/somali.php 
This website offers quality translations of medical information in multiple languages.

http://www.nlm.nih.gov/medlineplus/languages/languages.html 
Medline Plus offers translations of health information in over 45 languages.

Somalis

https://patienteducation.osumc.edu/Pages/search.aspx?k=somali
The Ohio State University Medical Center Interpreter Services office offers many patient education materials for Somalis. This website also offers multilingual resources in other languages.

http://www.state.gov/r/pa/ei/bgn/2863.htm
US Department of State Policy on Relations with Somalia.

Cultural Immersion Activities

http://www.theirc.org 
The International Rescue Committee welcomes individuals to spend as much time as they want helping refugees with resume writing, finding a job, learning English, and with simple activities of daily living. International Rescue Committee, 122 East 42nd Street, New York, NY 10168 USA. Phone: (212) 551-3000.

http://www.unrefugees.org/
Each year the United Nations Refugee Agency celebrates World Refugee Day in order to keep the public aware of the refugees’ situation. Their website offers information about the national celebration as well as how to host a celebration in your city.

http://refugees.org/
The U.S. Committee for Refugees and Immigrants offers information on ways to donate your time and expertise to help refugees and immigrants in the United States. Contact information for organizations in your community is available. At various centers you can volunteer to become a youth mentor or community liaison, teach computer skills and job training, or house a refugee while a permanent residence is found.

The Kite Runner
Read the novel (or watch the movie): by Khaled Hosseini (2003), Riverhead Books. The book was adapted into a film in 2007. The Kite Runner tells the story of Amir a young boy from the Kabul Afghanistan, who betrayed his best friend Hassan, the son of his father's servant. The story is set against a backdrop of tumultuous events, from the fall of the monarchy in the country through the Soviet invasion, the rise of the Taliban, the mass exodus of refugees to the U.S. and life after resettlement.

Sickle Cell Disease

http://www.sicklecellinfo.net 
This website is designed to offer education to the public about sickle cell disease. It provides basic information and describes current research on the disease.

http://www.ascaa.org 
The American Sickle Cell Anemia Association offers diagnostic testing, evaluation, counseling and supportive services to individuals and families at risk for Sickle Cell Disease. Their website allows discussion with other families, provides educational materials, supplies information about support groups and events in the United States, as well as listing current research studies and recent publications for public viewing.

http://www.madisonsfoundation.org/ 
Madison’s Foundation works to improve the amount and quality of information available to parents of children with life-threatening diseases. Their website offers communication pathways among parents, physicians, and other providers.

 http://ghr.nlm.nih.gov/condition=sicklecelldisease 
National Library of Medicine Genetics Home Reference answers the most frequently asked questions about sickle cell disease and provides numerous resources to find additional information.

http://www.sicklecelldisease.org 
The Sickle Cell Disease Association of America advocates for the quality of life and services for individuals affected by sickle cell disease. Their website offers information about the disease, sickle cell disease organizations in your area, educational opportunities, information about current research, and links to various resources.

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