Resources/Referral/Follow Up

Case

Shawn Miller is a genetic counselor who has recently been asked to take over an ongoing research project for a colleague who is going on maternity leave. Shawn’s responsibilities will include enrolling patients in an international multi-center genome-wide association study hunting for recessive alleles involved in susceptibility to pancreatic cancer.

Because the study is looking for recessive contributions, the target population is commonly offspring of consanguineous couples. In this geographic area, candidates for the study tend to be first or second generation low-income immigrants from the Middle East. The research team posted flyers at local community markets, the bus station, and neighborhood activities centers to identify candidates for the study. Since the city is economically depressed, the researchers anticipate that some people may volunteer to be in the study hoping to get free health care. Shawn’s supervisor has called a meeting to discuss the cultural and ethical issues involved in this study.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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