Pedigree

Resources

Healthcare Needs

http://www.glma.org 
The Gay & Lesbian Medical Association (GLMA) has been working to bring about equality in healthcare for GLBT people since 1981. This website educates patients and providers about the healthcare needs of GLBT patients. Resources for patients and their providers are available.

Healthcare Equality Index 2020 - HRC
The Gay and Lesbian Medical Association and The Human Rights Campaign Foundation Healthcare Equality Index educates healthcare policymakers to eliminate barriers to GLBT persons receiving adequate care.

Laws and Regulations

http://www.hrc.org/state_maps
The Human Rights Campaign offers descriptions of all laws regarding GLBT issues by state.

http://www.glad.org
Gay and Lesbian Advocates and Defenders (GLAD) has been advocating for equal justice for GLBT persons regarding sexual orientation, gender identity and expression, and HIV status since 1978. Their website discusses current projects, recent achievements and current laws regarding GLBT persons in the United States. Resources regarding the rights of GLBT persons in specific states are provided.

http://www.aclu.org/lgbt
The American Civil Liberties Union (ACLU) works with legislatures and communities to protect the individual rights that the Constitution guarantees all Americans. The ACLU strives to extend these rights to those who have been denied including but not limited to sexual minorities, racial minorities, people with disabilities and prisoners. This website includes lesbian and gay rights publications, legal and legislative documents, various resources and fact sheets, as well as current and past court cases regarding gay and lesbian rights.

Fact Sheets and Additional Resources

A Provider’s Handbook on Culturally Competent Care. Lesbian, Gay, Bisexual and Transgender Population, 2nd Ed. (2004). Kaiser Permanente National Diversity Council and Kaiser Permanente National Diversity Department, Kaiser Foundation Health Plan, Inc.

http://www.healthhiv.org/sites-causes/national-coalition-for-lgbt-health/
The National Coalition for Lesbian, Gay, Bisexual, and Transgender Health works to increase the quality of health services for GLBT persons, to increase the cultural competency of health providers, and to reduce disparities due to community and government policies. Their website provides GLBT health updates, information on their goals and progress towards improving GLBT health, as well as additional resources to learn more about GLBT health. These resources include information on Academic Journals, City Commissions/Departments of Health, Gay and Lesbian Health Centers, HIV/AIDS Agencies & Organizations, National Organizations, Trans Health Organizations, Bisexual Organizations, Lesbian Health Organizations, Aging Organizations, and more.

http://www.sart.org
This website created by The Society for Assisted Reproductive Technology (SART) helps patients find and contact infertility clinics and view IVF success rates. Includes fact sheets and step by step guides.

http://www.hrc.org
The Human Rights Campaign has been continually working for GLBT rights since 1980. Their website provides information about the issues, laws and elections, how to get involved and events going on in your community.

Counseling and Cultural Competency

These websites suggest preferred bias-free language in various domains that are useful in genetic counseling:

10 Tips for Working with Transgender People

http://blog.apastyle.org/apastyle/bias-free-language/

http://www.sharewords.com/substitute.html

http://www.adl.org/education-outreach/curriculum-resources/c/toward-communication-free-of.html

http://www.genopro.com
See this website for more information on creating pedigree and genogram composites.

Videos and Books

Bennett, R.L. (1999). The Practical Guide to the Genetic Family History. New York: Wiley- Liss.
A primer on pedigree drawing and interpretation for genetic counselors and other health professionals.

Bono, C. & Fitzpatrick, B. (1998). Family Outing. Boston: Little, Brown, and Company.
Story of Chastity Bono’s, identity development as a lesbian, and daughter of superstars Sony and Cher Bono. The book provides helpful insights into issues related to coming out, and dealing with the negative and positive perceptions of family members and others.

Cohen, B. & Jinks, D. (Producers), & Van Sant, G. (Director). (2009). MILK [Motion Picture]. United States: Focus Features.
Popular movie about Harvey Milk, the first openly gay man elected to public office in the U.S. The movie uses actual footage documenting the prevalence and impact of rampant homophobia in the 1970’s on Harvey Milk’s failures and successes running for a position on the San Francisco Board of Supervisors.

Gilbert, J. (Project Director), & Gerber, R. (Script Writer). (2003). Cultural Issues in the Clinical Setting [Motion Picture]. United States: Kaiser Permanente.
“Cultural Issues in the Clinical Setting” is a collection of scenarios depicting common problems that arise in the clinical setting dealing with the clashing of different cultures, communication barriers, and misconceptions of ideas and beliefs. Along with the videos is a facilitator’s guide that is designed to raise discussion and understanding of each issue. There are two scenarios depicting gay and lesbian patients that are excellent resources.

 

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